The annual meeting of DDG, the German Dystonia Association, was held in Kassel. President Robert Scholten from Dystonia Europe took part in the meeting. After the medical presentations, there was the opportunity to take part in a Jump for Dystonia photo shoot. We would like to thank DDG in all their work to help increase…

Alongside the EAN Congress in Berlin, EFNA (European Federation of Neurological Associations) held its General Assembly. A new President, Ann Little (representing the International Bureau of Epilepsy) was elected. She takes over after Audrey Craven who stepped down after almost four years in the position, leading the work to implement EFNA’s new strategic direction. An…

The Boston Scientific headquarters are in Valencia, California. Before the MDS in San Diego, Monika Benson paid a visit to the manufacturing site for a guided tour, followed by a ”Lunch N Learn on dystonia” for the employees. Monika presented the work and mission of Dystonia Europe, as well as her own dystonia story. At…

The Global Expert Summit organized byr Merz Pharmaceutical attracted about 400 physicians, physiotherapists, Merz representatives from all over the world last May in Berlin. On the programme were various sessions on ”How to improve treatment outcomes and satisfaction of dystonic patients”. Among the faculty were Professors Dirk Dressler from Germany and Joseph Jankovic from the…

Last week over 100 Merz leaders from 20 countries were gathered in Mainz, Germany for the Second Merz Leadership Summit. Merz is a family owned German company manufacturing botulinum toxin. The 2-day meeting opened with focus on the Customer & Patient Perspective. Dystonia Europe Executive Director Monika Benson, who is a dystonia patient herself, shared her…