On April 25 Paolo Corsi passed away in Milan at the age of 78. He had been involved in the Italian Dystonia Association: A.R.D. since its beginning, first as a Board member, and between 2008 and 2014 he was the President. He had laryngeal dystonia, which also affected his job as an engineer. He developed…
EU Activities – The Book of Evidence
The Brain, Mind and Pain (BMP) initiative launched last April its updated Book of Evidence for the 2019-2024 EU mandate. This Book of Evidence (BoE) sets a strategic vision on policy action to deliver better care for people with neurological and chronic pain disorders in the EU. It will be used as the core policy document of the MEP…
Annual Meeting of The Associazione Per La Ricerca Sulla Distonia
On March 23rd, 2019 A.R.D. held its annual meeting in Hotel Adriatico in Florence; our last meeting in this charming town had been in 2007 and the first one was 20 years ago, in 1999. The title for this year was “Looking to the future: research and experience in comparison” as we wanted to focus…
Living Well With Dystonia – Skiing from Border to Border- Rajalta Rajalle Hiihto
8 – 17 March, 2019 Springtime had already announced its arrival with snowdrops and crocuses around our home, when Lilo and I, together with 13 colleagues of ours started on a trip northward on March 8, eager to participate in a special skiing event, called ‘Rajalta Rajalle Hiihto’: Crossing middle Finland from the Russian to…
Around Europe and Beyond – DRIVE for Dystonia
My story with Dystonia started in February last year. It came suddenly, without any signs of warning. My neck became stiff and my head started to turn to the side. First was there was disorientation – what’s happening to me? Why can’t I control myself? Why is my body not listening to me? Work and…
