Our congratulations to Dr. Niccolò Mencacci and the David Marsden Award 2017 for his paper: “A Missense Mutation in KCTD17 Causes Autosomal Dominant Myoclonus-Dystonia”. Dr Mencacci was presented with the award by Dystonia Europe President Merete Avery at the D-DAYs 2017 held in Rome last weekend. Dr Mencacci expressed his thanks to DE and Ipsen for the…

The Dystonia Europe D-DAYS 2017 and 24th Annual Conference and General Assembly were  held on May 12,13 and 14th in Rome. It was a joint event between Dystonia Europe and the Italian Association “Associazione per la Ricerca sulla Distonia ” A.R.D.  who celebrated its 25th anniversary, as it was founded in Rome in March 1992…

A 2-day workshop on Governance was organised by the European Federation of Neurological Associations – EFNA, in Dublin, Ireland last week. It was held alongside the Extra General Assembly and members of the EFNA Board as well as representatives of member organisations from disease areas such as epilepsy, Huntington’s, ADHD, ataxia, Brain tumor and more…

This weekend the Norwegian Dystonia Association held its Annual Meeting and General Assembly in Trondheim, Norway. Around 40 members (dystonia patients and family members) had come from all over Norway for the 2-day-meeting. President Anniken Hansen welcomed everybody and gave an update of the achievements of the Association over the past year. The 3-year Physiotherapy…

Last week of January the 3rd Think Tank was held in Lund, Sweden. The Dystonia Europe Board had come to Lund earlier in the week for the first board meeting of the year to plan and discusse this year’s activities and projects. Tink Tank participants are the Board members and representatives from our Platinum sponsors. For…