On 15-16th October, the EFNA Autumn Academy of the Training Initiatives for Neurology Advocates [TINA] took place. 30 participants from neurology patient groups from CEE countries gathered in Bucharest to discuss the future of healthcare in the EU in the context of the upcoming EU elections, as well as how patient groups can achieve better financial…
Dystonia Awareness Month 2018
Our Second Year Participating First of all a great THANK YOU to all of you who took part in our Dystonia Awareness Month on-line activities last September. The success would not have been possible without your support and help in sharing our posts, videos, quotes etc. This was the second time Dystonia Europe was taking part…
Dystonia Europe at the 23rd ESSFN Congress in Edinburgh
Last month Dystonia Europe took part as an exhibitor at the 23rdCongress of The European Society for Stereotactic and Functional Surgery, an organization which frontiers the progress of functional and stereotactic neurosurgery of the human nervous system. About 700 participants, including exhibitors, had come to Edinburgh for this special event which took place at the…
Conference for Parents & Carers of Children and Young People with Dystonia (UK)
United Kingdom: Conference for Parents & Carers of Children and Young People with Dystonia On 22nd September we were delighted to deliver our Conference for Parents and Carers of Children and Young People with Dystonia which was attended by over 100 adults and children. Carol Huntley, whose husband has dystonia, was there with her family and…
EFNA Meetings in Brussels
Dystonia Europe Executive Director Monika Benson is a Board Member of EFNA. This week she attended its Management Committee Meeting in Brussels. The work of EFNA is concentrated around four pillars: Awareness, Empowerment, Advocacy, Engagement which guide the EFNA Board on what projects and activities to focus on. At the meeting EFNA Executive Director Donna…
