New KarlSpeech AAC App Launched June 2018 – Developed by Dystonia Sufferer’s Parents The KarlSpeech Smart Device App is an Augmentative Communications App (AAC) for people with severe Speech & Communications Difficulties. Designed specifically for Apple iPhone, iPad and iPod Touch, The App is integrated with Universal Symbols provided by SymbolStix. The…
25th Anniversary of DDG – the German Dystonia Association (Germany)
Germany – 25th Anniversary of DDG – the German Dystonia Association The Annual General Assembly of the Deutsche Dystonie Gesellschaft (DDG) was chaired by its president Hedwig Hagg and took place in the Hotel Strada in Kassel from 21st to 22nd July 2018. “Dystonia is moving – back then and today” (Dystonie bewegt – damals wie…
Dystonia Europe Summer Think Tank 2018
Last July the 5th Dystonia Europe Think Tank was held in Lund Sweden. The Think Tank is held twice a year and members are the Dystonia Europe Board and two representatives from each one of our Platinum Sponsors: Merz, Medtronic, Ipsen and Boston Scientific. Together we discuss projects and activities, whit the best interest of…
Didi Jackson | In Memoriam
Dystonia Europe announces, with great sadness, the passing of our former President, Didi Jackson on 14 February, 2018. The 1980s and early 1990s were the early days of dystonia becoming better-understood by the medical profession, and it was very difficult for patients to obtain good information and medical advice. Didi received her own diagnosis and…
EFNA/BMP UPDATE | Summer 2018
It’s been a busy start to 2018 for the European Federation of Neurological Associations [EFNA]. Training Initiatives for Neurology Advocates Already, there has been two workshops as part of its Training Initiatives for Neurology Advocates [TINA]– with both including dystonia delegates. The first was another national workshop in Romania, to celebrate Brain Awareness Week…
