Professor Brigitte Girard is a specialized ophthalmologist located in Paris, famous in dystonia and blepharospasm.  She’s the Vice-President of AMADYS (French dystonia association) Scientific Committee for many years.  She’s so dedicated to her patients and her field of work that she has decided to write a book on blepharospasm during her spare time and holidays! …

Hello everyone, My name is Adam. I am a Board Member of Dystonia Europe and Board Secretary of the Polish Dystonia Association. I am also a founder of a Facebook support group for dystonia patients and I run a website called ”Dystonia Good Story”. I am Polish but I live in Ireland.  Paradoxically, my work…

Have you seen our Youtube channel? https://www.youtube.com/user/DystoniaEurope Follow us here to get our latest videos! At our 25th Anniversary Conference and D-DAYs 2018 in Brussels we live streamed and video-recorded our event for the first time. About 500 people watched the livestream during the two-day conference. Now all presentations are available on the Dystonia Europe youtube…

New KarlSpeech AAC App Launched June 2018   – Developed by Dystonia Sufferer’s Parents  The KarlSpeech Smart Device App is an Augmentative Communications App (AAC) for people with severe Speech & Communications Difficulties. Designed specifically for Apple iPhone, iPad and iPod Touch, The App is integrated with Universal Symbols provided by SymbolStix.      The…