Pain Alliance Europe is happy to announce the second edition of the Brain, Mind, and Pain Patient-Centred Innovation Grant with the support of Grünenthal and partner organisations. The core of PAE’s mission is to be the voice of patients, including chronic pain patients and patients living with a neurological condition. The new theme: “Stop Stigma! Reducing stigma for…
Cervical dystonia: a survey of patients’ experience with botulinum toxin type A injections
This survey is now closed. We want to thank all who participated in the survey, an international survey, conducted by Ipsen and Carenity. The results will help to better understand the experiences of patients receiving botulinum toxin type A injections. This survey was especially targeted for people living in Germany, United Kingdom, Italy and France,…
EFNA co-hosts World Brain Day events in 4 EU capitals
To celebrate World Brain Day (July 22nd), the European Federation of Neurological Associations [EFNA] co-hosted events in four European capitals – Brussels, Bucharest, Dublin and Warsaw! The aim of these events was to hear what matters most to neurology patients in terms of their health outcomes – #BrainLifeGoals – and to discuss how this can…
Poland, the second country in Europe with the Brain Plan
A strategic Brain Plan report for Poland was announced on World Brain Day, July 22, 2019 after several years of work lead by NeuroPozytywni Foundation. The document was prepared by the foundation in cooperation with many experts. The event was organized with the support of the Patients’ Ombudsman office in Warsaw. “Brain Plan for Poland”…
Update on Research at Dystonia Europe Conference Dystonia Day 2019
This year London hosted an outstanding meeting of the Dystonia Europe (DE) family. People with dystonia, their loved ones, physicians, nurses, speech therapists, physiotherapists gathered to learn, teach and experience the magic of D-Days. The conference in general, was divided into two parts: patient’s experience and scientific update. Merete Avery, The President of Dystonia Europe,…
