My story with Dystonia started in February last year. It came suddenly, without any signs of warning. My neck became stiff and my head started to turn to the side. First there was disorientation – what’s happening to me? Why can’t I control myself? Why is my body not listening to me? Work and everyday life…
Meet MyDystonia Ambassador Gill from the UK
Can you introduce yourself briefly? My name is Gill Ainsley and I am a 58 year old mother of two sons and grandmother of two granddaughters. I live in the north east of England with my husband of almost 40 years, John. Tell me about your work experience and how it relates to your work…
New Research Ventures For Musician Dystonia
Musician Dystonia is a focal task-specific variety of the disorder which affects up to two percent of musicians, both professional and amateur. This is a far greater occurrence than afflicts any other fine motor skill occupation. These “Writer’s Cramp” dystonias can strike surgeons, chefs, dentists, tailors, writers, and even professional golfers when putting. As with…
David Marsden Award 2019 Update
The 9th edition of the David Marsden Award will be presented on 6 July at the D-DAYs in London. We have received several applications and the Selection Committee is now reviewing the submissions. We look forward to meet the winner in London and to present him/her in the next newsletter. Dystonia Europe established the…
4th International Congress on Treatment of Dystonia: For All who Care for People with Dystonia
Under this motto almost 400 participants from 4 continents met from May 8th-11th in Hannover, Germany. Together with a faculty of more than 70 world-leading experts from the fields of neurology, neurosurgery, neuropaediatrics, neurogenetics, basic sciences and allied health sciences this was, again, the leading international dystonia congress. The congresses emphasised on novel treatments for…
