To celebrate World Brain Day (July 22nd), the European Federation of Neurological Associations [EFNA] co-hosted events in four European capitals – Brussels, Bucharest, Dublin and Warsaw! The aim of these events was to hear what matters most to neurology patients in terms of their health outcomes – #BrainLifeGoals – and to discuss how this can…
Poland, the second country in Europe with the Brain Plan
A strategic Brain Plan report for Poland was announced on World Brain Day, July 22, 2019 after several years of work lead by NeuroPozytywni Foundation. The document was prepared by the foundation in cooperation with many experts. The event was organized with the support of the Patients’ Ombudsman office in Warsaw. “Brain Plan for Poland”…
Update on Research at Dystonia Europe Conference Dystonia Day 2019
This year London hosted an outstanding meeting of the Dystonia Europe (DE) family. People with dystonia, their loved ones, physicians, nurses, speech therapists, physiotherapists gathered to learn, teach and experience the magic of D-Days. The conference in general, was divided into two parts: patient’s experience and scientific update. Merete Avery, The President of Dystonia Europe,…
The Dystonia Europe Board 2019
The 26th Annual General Assembly was held last Friday at the Novotel London West in Hammersmith. We are delighted to present to you the newly elected Dystonia Europe Board who now consists of: President Adam Kalinowski from Poland Vice-President Edwige Ponseel from France Treasurer Sissel Buskerud from Norway Secretary Gill AInsly from the UK Board…
Dr. Anne Weissbach Receives the David Marsden Award 2019
Our congratulations to Dr. Anne Weissbach, Institute of Neurogenetics in Lübeck, Germany, and the David Marsden Award 2019 for her paper: “Alcohol improves cerebellar learning deficit in myoclonus-dystonia: A clinical and electrophysiological investigation”. Dr. Weissbach was presented with the award by Dystonia Europe President Merete Avery at the Dystonia-Days 2019 held in London last weekend….
