First of all a great THANK YOU to all of you who took part in our Dystonia Awareness Month on-line activities last September. The success would not have been possible without your support and help in sharing our posts, videos, quotes etc. For the third year Dystonia Europe was taking part in the Dystonia Awareness…
7th Edition of the Childrens Joy Association Event: Dystonia Rehabilition for Adults and Children in Romania
People with dystonia have participated, as well as their families or but also specialists in the field of rehabilitation. From three cities in Romania -Timisoara, Zalau and Baia Mare. Before the workshop, the patients had a social meeting, in the Dr I.Trifon Medical Clinic, where they could visit the cabinet where physiotherapy is practiced. During…
7th Biennial Workshop on Dystonia and Parkinson’s Disease in Rome
This workshop took place on September 18th and 19th; its planner was Prof Antonio Pisani (Tor Vergata University, Rome) who has organised this event since 2007. Dystonia and Parkinson’s disease have traditionally been viewed as distinct movement disorders. However, compelling clinical and experimental evidence suggest that these diseases can share, at least to some extent,…
Summer Think Tank 2019
Think Tank members joined later in the day in time for dinner. Members of the Think Tank are our Platinum sponsors: Boston Scientific, Ipsen, Medtronic and Merz. Unfortunately the representatives of Merz and Medtronic could not attend this time. It was a very fruitful meeting where focus was on what to do for next year’s…
Capacity building on Empowering Leadership and Positive Organisational Governance EPF – Second Meeting Bulgaria
EPF held the second EPF Capacity Building Programme: Enabling Leadership and Positive Governance meeting in Sophia, Bulgaria in the beginning of September. The first meeting was in Brussels in March 2019, and you can read more about the meeting in the DE Newsletter 1, 2019. The participants were leaders from countries throughout Europe, to mention…
