We talked to Prof Dressler how the Corona crisis has affected dystonia patients in Germany but also in other countries. Q: Professor Dressler, the Corona crisis has severely affected botulinum toxin therapy. What happened? Dressler: During the Corona crisis the access to many routine medical services were restricted or even completely blocked. This also happened…
Survey on Impact of COVID-19 Pandemic on Symptoms, Activity and Quality of Life in People Living with Dystonia.
Associate Professor Lynley Bradnam, Dr Rebecca Meiring, Dr Silmara Gusso, research assistant Tia Lindbom, Department of Exercise Sciences, University of Auckland, invite you take part in an anonymous survey investigating the impact of COVID-19 pandemic on symptoms, activity and quality of life in people living with Dystonia. You are eligible to take part if you have…
EFNA #BrainLifeGoals Project Grant Winners 2020
The #BrainLifeGoals campaign is an initiative of the European Federation of Neurological Associations (EFNA) that aims to raise awareness of the impact of neurological disorders. EFNA started an initiative #BrainLifeGoals Project Grant last year, to support work on one of the EFNA’s advocacy themes. In 2019, in support of this campaign, EFNA awarded grants of…
Launch of European Dystonia Research Consortium: EurDyscover
On Tuesday 7 July the kick-off meeting of the EurDyscover Consortium took place on Zoom. Coordinator is the University Hospital of Würzburg, Neurology department, and Jens Volkmann and Chi Wang Ip. Other partners in the consortium are: • Antonio Pisani, IRCCS Fondazione Santa Lucia, Laboratory of Neurophysiology and Plasticity, Rome, Italy • Albino Oliveira-Maia, Fundação…
EFNA Webinar – Where´s Neurology? Influencing Covid Recovery Planning, Programmes and Policies’
On the 30th June Dystonia Europe participated in «Where´s Neurology?», a webinar held by EFNA (European Federation for Neurology Associations). The webinar is a part of a series to discuss how EFNA can ensure that our voices are heard and integrated in the post-pandemic recovery planning phase, including the development of policies and programmes. EFNA…
