A survey by the European Federation of Neurological Associations, in partnership with the European Academy of Neurology PURPOSE OF THE SURVEY Many surveys have captured the impact of the Covid-19 pandemic on patients’ access to treatment and care. With this survey, we want to better understand how care pathways were reconfigured for the neurology patient…
Webinar Series on Digital Health and Workshop by EPF
EPF (European Patient Forum) has held a series of webinars in 2020 on Digital Health. Dystonia Europe is a member of EPF (a leading voice for patient organisations in Europe, working with EU stakeholder and expert groups). DE has attended all the webinars and workshops held by EPF in 2020. Some of the topics in…
Meet Pia, Chairwoman of the Danish Dystonia Association
What is your name? My name is Pia Vejle Why do you like helping others? I always had this thing about helping other people, making other people smile is the best gift. When I was around 15 years old (many years ago), it started out when some young children never got to the trips because…
Specialized Physical Therapy Reduces Disability and Pain in Cervical Dystonia
September the 21st was a memorable day for Joost van den Dool. On that day he successfully defended his PhD thesis at the University of Groningen in the Netherlands. His research focused on the effectiveness of a standardized physical therapy program for patients…
September is Dystonia Awareness Month
What a fantastic month of dystonia awareness in spite of the pandemic! THANKS to all of you who took part in our on-line activities last September. The great success would not have been possible without your support and your help in sharing our content. This was the fourth year that Dystonia Europe was taking part…