In 2019, Dystonia Europe was awarded funding from the Boston Scientific Foundation Europe to create the Dystonia Talks awareness videos for that year’s Dystonia Awareness Month. In this article, we hear from the BSFE President, Sandrine Bazile, as she reflects on the Foundation’s successes and her hopes for the future. Supporting Digital solutions that are…
Entering a New Era of DBS Programming with Game-changing visualisation software
A variety of treatments are available for people living with dystonia; deep brain stimulation (DBS) can be a beneficial treatment option for improving their quality of life. The treatment involves the placement of two electrodes into the brain, connected by a wire under the skin to a stimulator, usually placed in the patient’s chest or…
NORWAY, Digital Dystonia Activities
PhD Jeanette Koht, Norway About Jeanette Koht Working with Dystonia and treatment since 2001. Adviser for Norwegian Dystonia Association (NDF) for many years Last Project together with NDF: Dystonia and physiotherapy Trained neurologist in 2006 PhD Hereditary cerebellar diseases Head of Department of Neurology Oslo University Hospital. The Norwegian Dystonia Association arranged a webinar with Jeanette Koht…
BELGIUM, Online meetings: A blessing in Disguise
COVID-19 has wreaked much havoc over the past year in Europe and beyond. For us at Dystonie.be, the Belgian association for dystonia patients, the biggest health crisis in living memory proved to be a cloud with a silver lining. Online meetings allow us to connect with members in all parts of the country. You might…
New Consensus Guidelines for Botulinum Toxin Therapy of Dystonia and Spasticity
Professor Dirk Dressler Botulinum toxin (BT) therapy is based on applying appropriate doses of BT into an appropriate selection of muscles. Both, the list of target muscles together with their BT doses, constitute the dosing scheme. Developing the dosing scheme for each patient individually requires considerable experience and makes BT therapy what some people might call…
