ALDE—Asociación de Lucha Contra la Distonía en España (the Spanish dystonia association), held a conference on November 20th in Madrid, to celebrate its 30th anniversary. Adam Kalinowski, took part in this event as a representative of Dystonia Europe. It was a great opportunity for our president to meet representatives and partners of ALDE and to…

                  Dystonia Europe is delighted to congratulate Prof Tom Warner, Institute of Neurology, Queen Square, London, on his recent election as President of the Association of British Neurologists. This is a well-deserved honour for   a very fine clinician and researcher, who is Director of the Reta Lila…

EPF (European Patient Forum) held an online congress over 4 days, 26-29 October. This was an extensive and excellent Congress given on a platform called Swapcard, with many possibilities to participate actively. Here we give a brief insight of some of the topics and discussions. In the opening session, “The digitalisation of health and care…

Dr Jeanette Koth To have Contact Persons is an important part of the work the Norwegian Dystonia Association (NDF). A contact person, in this context, means a person who is diagnosed with dystonia himself/herself and has had it for a while, and has been trained on how to respond to a person that contacts NDF….