Annual conference of “Dystonie-und-Du e.V.” sends out a signal of encouragement: Self-help association does not leave those affected and their relatives alone with their worries! From September 9th to 11th 2022, the association “Dystonie-und-Du” met in Dresden. With this event, the self-help association was able to reach many of those affected, their relatives, top-class practitioners…
MDS Congress 2022 in Madrid
Last September the MDS* congress took place for the first time after the pandemic. The 4-day meeting was held in Madrid, Spain and about 3000 participants joined from all over the world. Dystonia Europe Executive Director Monika Benson was there and had a stand in the room for non-profit organisations. * The International Parkinson and…
Participation at the Reuters Event: Pharma Europe 2022
Photo: Dystonia Europe Executive Director Monika Benson and Dr. Oleks Gorbenko, Ipsen Last October the Reuters Event: Pharma Europe 2022 took place in Nice, France. This meeting is for pharma pioneers and healthcare innovators and had more than 1000 attendees from across Commercial, Sales, Marketing/Digital, IT, Medical, Patient Engagement, Market Access, and RWE (Real World…
Publication on Dystonia: Dystonia Management across Europe within ERN-RND: Current State and Future Challenges
Liesanne M. Centen,#1,2 David Pinter,#3 Martje E. van Egmond,1,2 Holm Graessner,4 Norbert Kovacs,3 Anne Koy,5Belen Perez-Dueñas,6 Carola Reinhard,4 Marina A. J. Tijssen,1,2 and Sylvia Boesch7 Background Since the first European-wide evaluation of dystonia management in 2016, several efforts have been made to improve dystonia-care. One of these was the development of the Dystonia Disease Group as a part of the European Reference Network for…
Dystonia UK
According to the European Brain Council, there are more than 500,000 people living with dystonia across Europe, 100,000 of whom are estimated to live in the UK. While much of our work is centred around the dystonia community here in the UK, Dystonia UK has plenty of resources easily accessible for those across Europe and…
