United Kingdom: Conference for Parents & Carers of Children and Young People with Dystonia On 22nd September we were delighted to deliver our Conference for Parents and Carers of Children and Young People with Dystonia which was attended by over 100 adults and children. Carol Huntley, whose husband has dystonia, was there with her family and…
Romania – Report from a Busy Dystonia Awareness Month
The Romanian Association for patients with dystonia: Asociata Children’s Joy organized on the 8 th of September, the 6 th edition of the National Conference dedicated to patients who suffer from various types of dystonia, their families, and specialists who work in this field. The event took place during dystonia awareness month. The event included…
Interview with Professor Dirk Dressler
DE: Congratulations for your new book. What was the idea behind it? DD: The book is based on the concept of our ‘International Congresses on Treatment of Dystonia’, a congress series well established over the last ten years. We want to focus on one disorder only. And for this disorder we want to combine all…
President’s Message | Dystonia Europes 25th Anniversary
Dear all, It is with great pleasure we present this very special Anniversary Edition of our Dystonia Europe blog. You will learn about our 25-year history and also get the latest news from our Anniversary events that took place in Brussels last April. Our Anniversary celebrations kicked off with a special lunch event in the…
Have you sent a Dystogram?
At our 25th Anniversary in Brussels we invited speakers and guests to send a ‘dystogram’. Boston Scientific generously supported the project and produced the specially designed frame. We encouraged participants to get social and get together in the frame, take a photo and post on Facebook, Instagram or Twitter to congratulate DE and use the…
