Germany – 25th Anniversary of DDG – the German Dystonia Association The Annual General Assembly of the Deutsche Dystonie Gesellschaft (DDG) was chaired by its president Hedwig Hagg and took place in the Hotel Strada in Kassel from 21st to 22nd July 2018. “Dystonia is moving – back then and today” (Dystonie bewegt – damals wie…
Dystonia Europe Summer Think Tank 2018
Last July the 5th Dystonia Europe Think Tank was held in Lund Sweden. The Think Tank is held twice a year and members are the Dystonia Europe Board and two representatives from each one of our Platinum Sponsors: Merz, Medtronic, Ipsen and Boston Scientific. Together we discuss projects and activities, whit the best interest of…
Didi Jackson | In Memoriam
Dystonia Europe announces, with great sadness, the passing of our former President, Didi Jackson on 14 February, 2018. The 1980s and early 1990s were the early days of dystonia becoming better-understood by the medical profession, and it was very difficult for patients to obtain good information and medical advice. Didi received her own diagnosis and…
EFNA/BMP UPDATE | Summer 2018
It’s been a busy start to 2018 for the European Federation of Neurological Associations [EFNA]. Training Initiatives for Neurology Advocates Already, there has been two workshops as part of its Training Initiatives for Neurology Advocates [TINA]– with both including dystonia delegates. The first was another national workshop in Romania, to celebrate Brain Awareness Week…
Norway | Norwegian Dystonia Association 25 years
Norway The week after the Dystonia Europe 25th Anniversary events, NDF, the Norwegian Dystonia Association, held its 25th Anniversary celebration and Annual General Assembly at hotel Olavsgaard, just outside of Oslo. 75 dystonia patients and family members from across Norway had come to the event. Saturday morning, after registration, NDF Chairman Johann Arnfinn Warvik, welcomed…
