As part of Training Initiatives for Neurology Advocates [TINA], European Federation of Neurological Associations [EFNA] coordinated a meeting in Poland. This workshop took place Monday 28th and Tuesday 29th October 2019 in Warsaw and gave participants the opportunity to discuss specific access challenges in their countries/disease areas and reach consensus on the main barriers to…
Meet Dystonia Europe Treasurer and MyDystonia Ambassador Sissel from Norway
My name is Sissel Buskerud Mother of two sons, 4 grandchildren and a dog. Married to Oddbjørn for 49 years. Living close to Oslo in Norway. Work experience and how it relates to my work as Dystonia Ambassador I studied accounting and business at school, and have been working for many years as CFO (Chief financial officer)…
Norwegian Dystonia Association, October Meeting in Ålesund.
12 October the Norwegian Dystonia Association (NDF) held it’s meeting in Ålesund, a charming small city on the west coast of Norway. The leader of NDF Johan Arnfinn Warvik welcomed all and informed about the work of the organisation. NDF has a focus on many areas, like networking with the National Health providers, Neurologists, Physio-therapists…
Opening of DBS Educational Platform in Leuven
At the Health House in Leuven the first interactive patient education platform on Deep Brain Stimulation was launched – DBS Select. The invited guests were divided into two groups and then taken on a tour to discover the DBS storyline following the patient journey from considering DBS, implant of DBS, and the outcome. Participants could…
Dystonia Awareness Month 2019 & Dystonia Talks
First of all a great THANK YOU to all of you who took part in our Dystonia Awareness Month on-line activities last September. The success would not have been possible without your support and help in sharing our posts, videos, quotes etc. For the third year Dystonia Europe was taking part in the Dystonia Awareness…