Last year Dystonia Europe was one of the first recipient of the BMP (Brain, Mind and Pain) grant from Pain Alliance Europe and Grünenthal for our innovative project MyBrainNet. This is a platform that allows us to create multiple apps and connect these to one platform, where all data is collected centrally. This central platform…
7th Edition of the Childrens Joy Association Event: Dystonia Rehabilition for Adults and Children in Romania
People with dystonia have participated, as well as their families or but also specialists in the field of rehabilitation. From three cities in Romania -Timisoara, Zalau and Baia Mare. Before the workshop, the patients had a social meeting, in the Dr I. Trifon Medical Clinic, where they could visit the cabinet where physiotherapy is practiced. During…
Tyler’s Hope Think Tank at the University of Florida, USA
On November 12th, 2019, the 10th “Tyler’s Hope Think Tank” took place at the University of Florida, USA. This year around the topic of “DYT-TOR1A dystonia: Finding a road map to cure dystonia”. This meeting and the Tyler’s Hope Foundation are initiatives from the Staab family. The two eldest Staab children, Tyler and Samantha, developed…
My Dystonia 2.0
As you’ve probably read before, Dystonia Europe is currently working on the new MyDystonia. At the moment we are busy creating the new designs, so the new APP will have a brand new look and feel. We think this new design will be more appealing to use and also makes it easier to make new…
MyDystonia Receives a Prize for Patients’ Empowerment
Active Citizenship Network held its prize ceremony of the 2nd Edition of the European Civic Prize on Chronic Pain at the Concert Noble in Brussels. The four categories were: Patients’ Empowerment, Innovation, Professional Education, Clinical Practices. Dystonia Europe had submitted an application for the Patients’ Empowerment Prize for the project MyDystonia. And we were selected…
