What is your name? My name is Martina Kühn What are the benefits of working within a patient organisation? My mother has blepharospasm among other issues. Even though I do not have dystonia myself, I’ve come to realize over time how difficult living with dystonia can be in certain situations. More than 14…
Dystonia Physio Exercise Hub Project
The first team meeting for the international launch of the Dystonia Physio Exercise Hub took place at the end of March. Physiotherapist Johanna Blom from the University Hospital of Skåne in Malmö, Sweden is initiator and owner of the project. After a successful launch of the exercise platform in Sweden last November, it was time…
The new Boston Scientific Visualisation Software: Helping to Provide Personalised Deep Brain Stimulation Treatment for Dystonia Patients
For patients living with dystonia, deep brain stimulation (DBS) is an established, safe and effective treatment option.1 DBS is a surgical procedure during which two thin electrodes are inserted into the brain and conneted to a stimulator via an extension in the chest or abdomen.2 The treatment works by delivering targeted electrical pulses to the…
Dystonia Videos
We are excited to announce that we are working on the new Dystonia Awareness Videos project. Many years ago, Dystonia Europe published a short film “Seeing is Believing”. This video shows the symptoms of dystonia with a bit of humour. We know that this video is liked by many. You can watch it on our…
30th Anniversary of the Danish Dystonia Association
Turning 30 always requires a lot of support. The entertainer Hans Pilgaard helped the Danish Dystonia Association on its way, both with the funny and the more thoughtful. After an extremely successful AGM, it was time for a well-deserved break with coffee and side dishes. The next item on today’s program was a lecture with…
