It is with great sadness Dystonia Europe has announced the passing of our President, Adam Kalinowski, at the age of 37, following a tragic accident on 10 November 2022. Adam is from Poland but has lived in Ireland for the last 16 years. In 2006 he was diagnosed with cervical dystonia. Very soon he…
Launch in Europe: Dystonia Physio Exercise HUB – a Digital Platform with Exercises for Cervical Dystonia
One year ago, a digital platform for cervical dystonia was launched in Sweden, and a few weeks ago, on 28 November it was time for the launch in Europe. Research has shown that Botulinum toxin injections (BoNT-inj) combined with physiotherapy provide good benefit for most people with cervical dystonia (CD). Advanced treatment with Deep Brain…
30th Anniversary of Associazione per la Ricerca sulla Distonia – Italy
As A.R.D. was created in 1992, this year it reached 30 years and we wanted to celebrate the 30th anniversary in a special way; therefore we matched our Third National Dystonia Day to our anniversary, organising a concert followed by an online live broadcast, circulated by our social media. Most recently, A.R.D. had been…
Special Workshop on Physiotherapy for Cervical Dystonia
End of October the first meeting of a 3-day workshop on Physiotherapy and Cervical Dystonia was held in Umeå in Northern Sweden. Physiotherapist Johanna Blom from Skåne University Hospital in Malmö, Sweden, gave an introduction to what dystonia is and how it is treated. A demonstration patient was invited to take part in the…
Meet Bengt-Erik Calles, Sweden
What is your name? My name is Bengt-Erik Calles and I live in Sweden. I am President of Dystonia Sweden. I live 5 months of each year at my summerhouse in Hjortnäs, Leksand and the rest of the year in Falun. Both places are situated in Dalarna. What are the benefits of working within…
