EPF (European Patient Forum) held an online congress over 4 days, 26-29 October. This was an extensive and excellent Congress given on a platform called Swapcard, with many possibilities to participate actively. Here we give a brief insight of some of the topics and discussions. In the opening session, “The digitalisation of health and care…
Class for Contact Persons held by Norwegian Dystonia Association
Dr Jeanette Koth To have Contact Persons is an important part of the work the Norwegian Dystonia Association (NDF). A contact person, in this context, means a person who is diagnosed with dystonia himself/herself and has had it for a while, and has been trained on how to respond to a person that contacts NDF….
Dystonia UK Activities 2021
As another unpredictable year draws to a close, Dystonia UK reflects on a busy year of activities, while eagerly looking forward to the potential opportunities of the New Year. Virtual activities have continued with great strength. At the time of writing, we have provided 6 ‘Reach Out, Reach All’ webinars, including one live from Scotland,…
Book about Musician’s Dystonia, by Coralie Cousin: “The Day My Hand Stopped Playing: Treating Musician’s Dystonia: Aurélien’s story”
Dystonia Europe is pleased to present the new book by Coralie Cousin, a French therapist who has been close to our Medical and Scientific Advisory Board for many years. We are delighted to welcome this book, as musician’s cramp is rarely documented or reported. With a…
A.D.D.E.R. Action for Dystonia, Diagnosis, Education and Research
This is the third year A.D.D.E.R. have designed and delivered our dystonia awareness campaign throughout the month of September. After a great deal of thought I came up with the idea of asking people to imagine what it is like to have various types of dystonia. The campaign was aimed at people who know nothing about…
