A randomized, sham-controlled trial of pallidal neurostimulation versus botulinum toxin treatment for cervical dystonia (StimTox-CD) Deep brain stimulation (DBS) of the internal globus pallidus is highly effective for various forms of primary dystonia, but is currently considered a last resort therapy for severe and medication-refractory segmental or generalized dystonia according to treatment guideline. The first-line treatment…
Meet Johan Arnfinn Warvik from Norway: My Life with and without Dystonia
After using some parts of my story as background for a presentation on “Living with Dystonia”, I was strongly encouraged to share my story in the Norwegian Dystonia Newsletter. I was born on the west coast of Norway in 1954 and have had dystonia since 1985. Normal life: Like most of us, my life started…
Dystonia Physio Exercise HUB – A Digital Platform with Exercises for Cervical Dystonia
Research has shown that Botulinum toxin injections (BoNT-inj) combined with physiotherapy provide good benefit for most people with cervical dystonia (CD). Advanced treatment with Deep Brain Stimulation (DBS) also requires physiotherapy. Repetition of exercises is important to influence brain remodelling and achieve long-term improvements. Exercises should be individualised according to the pattern, nature and problem…
Dystonia Awareness Month 2021
Another successful Dystonia Awareness Month has taken place. It is amazing to see all the dystonia awareness activities taking place across Europe and around the world. There were special dystonia days and fund raising activities organised by our member associations. Special social media content with information and education on dystonia was created and shared. In…
Hello There – Meet Ulrike Halsch, President Dystonie und Du e.V, Germany
What is your name? My name is Ulrike Halsch What are the benefits of working within a patient organisation? The voluntary work in the patient organization is a lot of fun and is very diverse, but it requires a lot of responsibility. It is not guided by economic interests and has a social value because…
