Active Citizenship Network held its prize ceremony of the 2nd Edition of the European Civic Prize on Chronic Pain at the Concert Noble in Brussels. The four categories were: Patients’ Empowerment, Innovation, Professional Education, Clinical Practices. Dystonia Europe had submitted an application for the Patients’ Empowerment Prize for the project MyDystonia. And we were selected…
Visit to a Dystonia Research Lab
Prof Rose Goodchild is one of the members of the Dystonia Europe Medical and Scientific Advisory Board and she had invited me to her LAB at the VIB KU Leuven, Center for Brain Research in Leuven, Belgium. Since 2011 she has been leading a dystonia research group here. The 5-year project was funded by FDR…
Health is a Shared Global Value
Globalisation has created convergence of individual countries’ health problems and, consequently, mutual dependence for generating solutions. This means that in today’s world, we can no longer consider health of particular countries or regions, such as European Union (EU), in isolation. Certainly, diseases know no borders and countries share many of the same health problems, though…
4th MyDystonia Ambassadors Meeting
A few months ago the Dystonia Europe Board asked me to organise the 4th Mydystonia Ambassadors meeting in my home town of Newcastle, England. I have never organised a meeting like this before and knew there was a lot to do and a lot to live up to as previous ambassador meetings had been very…
Advocating for Access to Neurology Treatment, Services and Supports
As part of Training Initiatives for Neurology Advocates [TINA], European Federation of Neurological Associations [EFNA] coordinated a meeting in Poland. This workshop took place Monday 28th and Tuesday 29th October 2019 in Warsaw and gave participants the opportunity to discuss specific access challenges in their countries/disease areas and reach consensus on the main barriers to…
