In addition to the well-known motor features of people with dystonia, also many have been reporting non-motor symptoms. Functional impairment, pain, social embarrassment, anxiety, social phobia, and stigmatisation seem particularly common and have a clear impact on the quality of life. This might considerably influence self-confidence and could, therefore, have an impact on relationship and…
Dystonia Europe Annual General Assembly 2022
Dystonia Europe held its 29th Annual General Assembly on 20 May at Hotel Scandic Copenhagen in Copenhagen, Denmark. It was a wonderful reunion for many of the DE members who had not met face-to-face since London 2019. A total of 27 participants from 13 member associations participated. Dystonia Europe President Adam Kalinowski welcomed all and…
EPF CONGRESS 2022
Dystonia Europe attended the EPF (European Patient Forum) Congress held in Brussels, Belgium 23rd and 24th of June. Dystonia Europe is a member of EPF, Rau Ganesco, Treasurer of EPF gave an opening speech on behalf of Marco Greco, President of EPF, who could not attend the Congress. Next Stella Kyriakydes, European Commissioner of Health…
David Marsden Award Winner Dr Susanne Knorr
At the end of Dystonia Europe’s annual conference Dystonia Days, President Adam Kalinowski presented the David Marsden Award to Dr Susanne Knorr from the University Hospital in Würzburg Germany, coincidentally the same place that last year’s winner was from. Susanne then went on to present her research ‘The evolution of dystonia-like movements in TOR1A rats after…
30th Anniversary of the Danish Dystonia Association
Turning 30 always requires a lot of support. The entertainer Hans Pilgaard helped the Danish Dystonia Association on its way, both with the funny and the more thoughtful. After an extremely successful AGM, it was time for a well-deserved break with coffee and side dishes. The next item on today’s program was a lecture with…
