Professor Brigitte Girard is a specialized ophthalmologist located in Paris, famous in dystonia and blepharospasm. She’s the Vice-President of AMADYS (French dystonia association) Scientific Committee for many years. She’s so dedicated to her patients and her field of work that she has decided to write a book on blepharospasm during her spare time and holidays! …
Meet Dystonia Europe Board Member Adam Kalinowski
Hello everyone, My name is Adam. I am a Board Member of Dystonia Europe and Board Secretary of the Polish Dystonia Association. I am also a founder of a Facebook support group for dystonia patients and I run a website called ”Dystonia Good Story”. I am Polish but I live in Ireland. Paradoxically, my work…
Dystonia Europe on Youtube
Have you seen our Youtube channel? https://www.youtube.com/user/DystoniaEurope Follow us here to get our latest videos! At our 25th Anniversary Conference and D-DAYs 2018 in Brussels we live streamed and video-recorded our event for the first time. About 500 people watched the livestream during the two-day conference. Now all presentations are available on the Dystonia Europe youtube…
Karl Speech App
New KarlSpeech AAC App Launched June 2018 – Developed by Dystonia Sufferer’s Parents The KarlSpeech Smart Device App is an Augmentative Communications App (AAC) for people with severe Speech & Communications Difficulties. Designed specifically for Apple iPhone, iPad and iPod Touch, The App is integrated with Universal Symbols provided by SymbolStix. The…
Didi Jackson | In Memoriam
Dystonia Europe announces, with great sadness, the passing of our former President, Didi Jackson on 14 February, 2018. The 1980s and early 1990s were the early days of dystonia becoming better-understood by the medical profession, and it was very difficult for patients to obtain good information and medical advice. Didi received her own diagnosis and…
