May 9, 2022

First ever Patient Experience Map in Cervical Dystonia Reveals Multiple Barriers

The first cervical dystonia patient experience map was published in February in the peer-reviewed publication, the Orphanet Journal of Rare Disease.   The development of the new map was a collaboration between Dystonia Europe and Ipsen and was underpinned by research of people living with cervical dystonia in the UK, Italy and France to shine…

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April 25, 2022

Webinar Drugs and Dystonia

MD PhD. Inger Marie Skogseid Senior Consultant Neurologist and Researcher Oslo University Hospital Photo by The Information Department at University Hospital   On February 22nd we hosted our 10th webinar in our webinar series. There were nearly 60 participants who followed the webinar on zoom, and sent live on Facebook. Inger Marie gave us an…

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March 10, 2022

Winter Think Tank 2022

Dystonia Europe Winter Think Tank 2022 was held on Zoom last February. DE had a Board Meeting the day before. Members of the Think Tank are our Platinum sponsors: Boston Scientific, Ipsen, Medtronic and Merz. President Adam Kalinowski welcomed all to the Think Tank meeting and Executive Director Monika Benson gave an update on the…

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