The Norwegian Dystonia Organisation (NDF) held a  training class for contact persons last October in Bergen, Norway. On the webpage NDF have listed contact persons from within the organisation who can be contacted about dystonia. It is important that all contact persons make it clear that they are not medically trained. A contact person is…

On 25 – 26th September, Dystonia UK held a digital Conference «Dystonia Matters Digital». There were morning and afternoon sessions on both days, with patient speakers and expert speakers from the medical field of dystonia. It started with pre-recorded sessions on the 25th  of September, and after the sessions it was Q&A (Questions and Answers)…

In September 2020 we had the members’ meeting of the Faroe Islands. The meeting was held at Hafnia Hotel in the middle of Torshavn. We ended up being a little group of members at the meeting, Covid-19 and the fear of participating in  social groups had its impact. But it still was a very  nice…

Dystonia UK is dedicated to helping people affected by dystonia in the UK and is spearheading the awareness raising activity this September. We  are so excited to share our plans for a festival themed Dystonia Awareness Month and how you can get involved! Dystonia Around The World At the end of July, we launched Dystonia…