In September 2020 we had the members’ meeting of the Faroe Islands. The meeting was held at Hafnia Hotel in the middle of Torshavn. We ended up being a little group of members at the meeting, Covid-19 and the fear of participating in social groups had its impact. But it still was a very nice…
Dystonia UK – Dystonia Awareness
Dystonia UK is dedicated to helping people affected by dystonia in the UK and is spearheading the awareness raising activity this September. We are so excited to share our plans for a festival themed Dystonia Awareness Month and how you can get involved! Dystonia Around The World At the end of July, we launched Dystonia…
Meet Thijs Vandewoude, Board Member and Contact Person Belgium
My name is? Thijs Vandewoude. I’m 36 years old and I live in West-Flanders. I work as a court clerk within the Belgian Judiciary. Thijs Vandewoude, Belgium Why do you like helping others? Because I experienced first-hand how important it can be to meet fellow patients and share experiences. I would like all dystonia patients…
EFNA co-hosts World Brain Day events in 4 EU capitals
To celebrate World Brain Day (July 22nd), the European Federation of Neurological Associations [EFNA] co-hosted events in four European capitals – Brussels, Bucharest, Dublin and Warsaw! The aim of these events was to hear what matters most to neurology patients in terms of their health outcomes – #BrainLifeGoals – and to discuss how this can…
Drive for Dystonia
My story with Dystonia started in February last year. It came suddenly, without any signs of warning. My neck became stiff and my head started to turn to the side. First there was disorientation – what’s happening to me? Why can’t I control myself? Why is my body not listening to me? Work and everyday life…
