On October 14 2017, former members of the self-help group Mannheim / Ludwigshafen decided to found a new SHG: the group Rhein / Neckar. At the same time, the plan to create a new association for people suffering from dystonia matured. Finally, on November 11, Evelyn & Volker Kreiss, Elke & Horst Roth, Susanne &…
Visiting The European Parliament
The Challenges of Dystonia: a Snapshot Across Europe 12 April 2018, D-Days lunch in European Parliament Salon For our 25th Anniversary event we were welcomed into the European Parliament, Brussels by Finnish Member of the European Parliament (MEP) Merja Kyllönen. She explained how she had become involved with Dystonia Europe when she agreed to do…
Italy | Run 4 Dystonia in Milan
On April 8 the 18th edition of the Milan Marathon took place on a warm and sunny spring Sunday. It consisted of 2 different races, with the same itinerary of 42 Km. : one classic agonistic marathon and a relay race organized by Charity Program, a great solidarity project created and supported by Milano Marathon…
Romania
Captive in my body Children’s Joy Association represents people with dystonia in Romania and they organised a national painting exhibition with the title: Captive in my body The event was dedicated to people with dystonia and it started at the end of February. The last day of February is dedicated to being the International Day…
Make Work Work – A Brain, Mind & Pain Workshop in the EU Parliament
The first meeting of this year of the MEP Interest Group on Brain, Mind and Pain was held on 21 February. The theme for the event was ‘How can the EU : #MakeWorkWork for young people affected by brain, mind and pain conditions?’ The meeting was hosted by Marian Harkin, co-chair of the Brain, Mind…
