The 8th International Toxins Congress was held in Madrid in mid January. Over 1600 participants from 84 countries joined. The opening session focused on Musician’s dystonia. Three patients shared their stories and also performed. The highlight of the session was when Dr. Anna Castagna on flute performed together with her patient Roberto on guitar. The…
EAN Education Committee Meeting in Vienna
On behalf of the European Federation of Neurological Associations (EFNA) and neurological patients, Dystonia Europe’s Executive Director, Monika Benson, attended the annual EAN Big Education meeting in Vienna last February. The European Academy of Neurology (EAN) is the professional association for neurologists in Europe with about 45,000 members, and there are another 40,000 not belonging…
Physiotherapists Train to Improve Dystonia Care
A specialised physiotherapy course focusing on dystonia recently brought twenty physiotherapists to the National Hospital for Neurology and Neurosurgery (Queen Square) in London. Hosted by physiotherapist Hanna Louissant and organised by Dystonia Europe, the workshop aimed to strengthen knowledge of physiotherapy as part of dystonia treatment. Opening the course, Monika Benson emphasised the long-term goal of improving treatment outcomes and quality of life…
Dystonia Europe Rocks!
“Dystonia Europe rocks!” It was a slogan that President Gill Ainsley was delighted to embrace. The city of Malmö took centre stage for Dystonia Europe during the last weekend of May, hosting the organisation’s General Assembly on Friday, 29 May, followed by Dystonia Day on Saturday, 30 May. Twenty-seven participants from twelve different countries gathered in…
Dr. Roxanne Lofredi is announced winner of the David Marsden Award 2026
Dystonia Europe is delighted to congratulate Dr. Roxanne Lofredi of Berlin, Germany, who has been announced as the recipient of the David Marsden Award 2026, for which she will receive a €10,000 prize. Dr. Lofredi is being recognised for her outstanding paper, “Striato-pallidal oscillatory connectivity correlates with symptom severity in dystonia patients”, which provides important…