January 2, 2024

Survey on the Use of Non-Traditional Therapies – take part!

Have you ever used acupuncture, herbal medicine or any other alternative treatment for your dystonia? In this survey a research group from Dublin aim to investigate the use of non-traditional therapies (herbal medicines, acupuncture, CBD oil) in people with focal dystonias. The survey should take less than 10 minutes to complete and asks about the…

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December 13, 2023

Dystonia Awareness Month 2023

Dystonia Awareness Month September 2023 was very successful. Thanks to everyone who followed us on our various channels and also for sharing our content further. It means a lot that the material we create is shared and spread to help raise awareness about dystonia. This year focus was very much on the five DystoniaLife videos…

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December 13, 2023

Meet Salvatore from Italy

  Introduction: Our life journey is marked by ups and downs, challenges that test us, and moments that inspire us. In my case, a neurological condition known as Myoclonus-Dystonia Syndrome led me down a path of difficulty and self-doubt. This article tells my story and how, through resilience and willpower, I found the strength to…

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December 13, 2023

The Move Europe

  On July 5 I was invited by Pr E. Flamand-Roze, neurologist at the Pitié-Salpêtrière Hospital, Paris, and co-creator of The Move program, to speak at the introduction of the competition. The Move Europe is an annual international tournament between 2nd and 3rd year medical students, who mime neurological syndromes in 5-minute sketches to learn…

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December 13, 2023

Excessive Psychological Stress can trigger the Onset of Idiopathic Cervical Dystonia

Q: Professor Dressler, you have just completed a study on excessive stress triggering the onset of idiopathic cervical dystonia. What is the background? Dressler: Idiopathic cervical dystonia is by far the most common form of cervical dystonia. Idiopathic means that there is only cervical dystonia and that it occurs without any identifiable cause. Genetics appear…

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