We are excited to announce that we are working on the new Dystonia Awareness Videos project. Many years ago, Dystonia Europe published a short film “Seeing is Believing”. This video shows the symptoms of dystonia with a bit of humour. We know that this video is liked by many. You can watch it on our…
Dr Alan Scott – Death of the Inventor of Botulinum Toxin Therapy
Dr Alan Scott with Monika Benson and Merete Avery, 2019 Prof Dirk Dressler, in Hannover, has known Dr Scott for many years, and he has provided the following obituary: Dr Alan Brown Scott ⴕ On December 16th 2021, Dr Alan Brown Scott died in his 90th year of age. He is the inventor of the…
Dystonia Europe Digital Resources
In 2020 Dystonia Europe launched several new digital activities. The pandemic made it impossible to travel to any meetings for over 2 years. Therefore we had to look at new ways of working. All board meetings were held on Zoom and we had to change the way we work and move all our activities on-line….
Dr Susanne Knorr Receives the David Marsden Award 2022
Our congratulations to Dr. Susanne Knorr, department of Neurology, University Hospital of Würzburg, Germany and the David Marsden Award 2022 for her paper: “The evolution of dystonia-like movements in TOR1A rats after transient nerve injury is accompanied by dopaminergic dysregulation and abnormal oscillatory activity of a central motor network.” Dr. Knorr was presented with the…
Children’s Joy Rare Disease Day
Rare Diseases Day was observed in Timisoara, Romania during the art exhibition’s 4th edition “Look at me from the inside” which is a continuation of the exhibition’s 3rd edition “Captive in my body”. This art exhibition reflects rare diseases including some forms of dystonia. The purpose of this exhibition is to draw attention to the…
