August 30, 2026

The Danish Dystonia Association’s Event 2 “Physiotherapists with the Needle – Dangerous or Forward-Thinking?”

EVENT 2 AT FOLKEMØDET 2026 Physiotherapists with the Needle – Dangerous or Forward-Thinking? Danish Dystonia Association   About Folkemødet Folkemødet, also known in English as the Danish Democracy Festival or the People’s Meeting, is Denmark’s largest annual festival of democracy. Held on the island of Bornholm, it brings together politicians, organisations, professionals, businesses, journalists and…

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August 25, 2026

Hello There – Meet Marita from Norway

What is your name? My name is Marita and I live in Drammen, Norway. I am 38 years old and I have a qualification as a health care worker. I worked in different health care areas until 2021. Then I decided to try something entirely different and I started to work in the construction industry. I…

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August 25, 2026

My Dystonia Story – Meet Sofia

My name is Sofia and this is my story. I am 20 years old, but I have already been through a lot. My mother had a difficult childbirth. When I was born, I went into a coma because I didn’t get enough oxygen. I recovered slowly, but the doctors said right away that they didn’t…

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August 25, 2026

A Glass of Wine, Without a Straw

A Glass of Wine, Without a Straw Ladies and gentlemen, Some of you might already know me, or have read my story on our website. I am Salvatore Caruso, a board member of the Italian Dystonia Association (A.R.D) and Dystonia Europe. I have Myoclonus Dystonia, and in 2022, I underwent Deep Brain Stimulation. I would…

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July 30, 2026

EFNA General Assembly and Member Meeting in Brussels

Member organisations of European Federation of Neurological Associations (EFNA) met in Brussels for the General Assembly (GA) on April 8th. The main subjects of the GA concerned the annual accounts and the Annual Report for 2025. The annual budget and operational plan for 2026 were also discussed and the strategic plan was approved for 2026-2030….

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