Dystonia Europe is pleased to announce the appointment of Alexandra Klemann as the newest member of its Board. Alexandra represents our member organisation Dystonie-und-Du (DyD) and brings with her a wealth of personal experience, professional expertise, and dedication to the community. Based in Berlin, Alexandra is mother of a 12-year-old son and a proud cat…
Cervical Dystonia Physiotherapy Course, September 2026 – London UK
Dystonia Europe has the pleasure of running a training course for qualified physiotherapists in the treatment of Cervical Dystonia. The course will be led by Johanna Blom who has 18 years experience treating dystonia and training other professionals. She has written a book about cervical dystonia and spasticity and in collaboration with Dystonia Europe has…
New Hope for People Living with Dystonia: How DBS Is Evolving
Discover how new technologies are helping doctors better tailor treatment to each patient. Deep brain stimulation (DBS) has been used for patients with severe dystonia, who had no other treatment options, since the mid-1990s. At the end of the 1990s and in the early 2000s, clinical studies showed that DBS of the globus pallidus internus (GPi) is an…
Physiotherapists Train to Improve Dystonia Care
A specialised physiotherapy course focusing on dystonia recently brought twenty physiotherapists to the National Hospital for Neurology and Neurosurgery (Queen Square) in London. Hosted by physiotherapist Hanna Louissant and organised by Dystonia Europe, the workshop aimed to strengthen knowledge of physiotherapy as part of dystonia treatment. Opening the course, Monika Benson emphasised the long-term goal of improving treatment outcomes and quality of life…
From Home: Lived experiences with Dystonia
Isobel Platt, is a Dystonia researcher and medical doctor working at the National Hospital for Neurology and Neurosurgery in England. Isobel recently contacted us to tell us about a collaborative ceramics art project she is working on with artist Zoe Wu, regarding lived experiences with dystonia. Their community project, ‘From Home,’ explores the relationship between…
