December 1, 2021

Have you signed up for EFNA’s eLearning content yet?

In late 2020, EFNA launched a pilot series of online e-learning modules on advocacy-related topics. These courses aimed to upskill participants on how they can effectively advocate in a virtual world by identifying and engaging key stakeholders and developing partnerships, hosting successful online events and developing and disseminating key advocacy messages. The courses are video-based…

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November 25, 2021

DDF and DE met in Copenhagen to plan for Dystonia Day 2022

This week Executive Director Monika Benson met up with Sandra Theil Sörensen from the Danish Dystonia Association. They visited possible venues for the upcoming Dystonia Day 2022 and discussed the program and activities. It is with great pleasure we are collaborating with the Danish Dystonia Association for this face-to-face event. Due to the pandemic we…

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November 15, 2021

EurDyscover Annual Meeting Update

On November 16 the annual meeting of the EurDyscover Consortium was held on-line. Professors Chi Wang Ip and Jens Volkmann welcomed the participants. Each working group then gave a presentation and update on the progress of the work. The Consortium includes specialists from dystonia expert centers in Germany, Czech Republic, France, Italy and Portugal. By…

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November 10, 2021

DE President at the Celebration of the 30th Anniversary of the Spanish Dystonia Association

ALDE—Asociación de Lucha Contra la Distonía en España (the Spanish dystonia association), held a conference on November 20th in Madrid, to celebrate its 30th anniversary. Adam Kalinowski, took part in this event as a representative of Dystonia Europe. It was a great opportunity for our president to meet representatives and partners of ALDE and to…

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