May 16, 2021

NORWAY, Digital Dystonia Activities

PhD Jeanette Koht, Norway About Jeanette Koht Working with Dystonia and treatment since 2001. Adviser for  Norwegian Dystonia Association  (NDF) for many years Last  Project together with NDF: Dystonia and physiotherapy Trained neurologist in 2006 PhD Hereditary cerebellar diseases Head of Department of Neurology  Oslo University Hospital. The Norwegian Dystonia Association arranged a webinar with Jeanette Koht…

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May 13, 2021

New Consensus Guidelines for Botulinum Toxin Therapy of Dystonia and Spasticity

Professor Dirk Dressler Botulinum toxin (BT) therapy is based on applying appropriate doses of BT into an appropriate selection of muscles. Both, the list of target muscles together with their BT doses, constitute the dosing scheme. Developing the dosing scheme for each patient individually requires considerable experience and makes BT therapy what some people might call…

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May 12, 2021

ROMANIA, Constructive Activities During a Pandemic

Catalina Crainic, President ‘Asociatia Childrens Joy’, Romania A fundraiser for genetic testing of 12 people with dystonia by The Children’s Joy Association (adults and children). Diagnosis and classification of dystonia is of great importance for the proper management of prognostic information and genetic counselling of patients. The cost of a test is $250. Genetic testing…

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