A specialised physiotherapy course focusing on dystonia recently brought twenty physiotherapists to the National Hospital for Neurology and Neurosurgery (Queen Square) in London. Hosted by physiotherapist Hanna Louissant and organised by Dystonia Europe, the workshop aimed to strengthen knowledge of physiotherapy as part of dystonia treatment. Opening the course, Monika Benson emphasised the long-term goal of improving treatment outcomes and quality of life…

“Dystonia Europe rocks!” It was a slogan that President Gill Ainsley was delighted to embrace. The city of Malmö took centre stage for Dystonia Europe during the last weekend of May, hosting the organisation’s General Assembly on Friday, 29 May, followed by Dystonia Day on Saturday, 30 May. Twenty-seven participants from twelve different countries gathered in…

Dystonia Europe is delighted to congratulate Dr. Roxanne Lofredi of Berlin, Germany, who has been announced as the recipient of the David Marsden Award 2026, for which she will receive a €10,000 prize. Dr. Lofredi is being recognised for her outstanding paper, “Striato-pallidal oscillatory connectivity correlates with symptom severity in dystonia patients”, which provides important…

In April 2025, Dr Luca Pollini, a Child Neurologist and Psychiatrist from Rome, became the first recipient of the Dystonia Europe Grant for Patient Care. This is a new initiative for prolonged, comprehensive training in Dystonia, in order to get fully experienced doctors that will provide high quality care for patients, disseminate knowledge, connect with…

As Edwige Ponseel concludes her term as President of Dystonia Europe, we would like to express our heartfelt thanks for her dedication, leadership, and commitment to the dystonia community. Since joining the Board in 2017 and serving as President since 2022, Edwige has played a key role in strengthening Dystonia Europe and supporting its member…