Dystonia Europe held it’s 28th Annual General Assembly Sunday 31 May. There were 27 participants from 16 countries. The elected DE Board and Staff is from top left: Board Member Jukka Sillanpää, Finland; President Adam Kalinowski, Ireland; Executive Director Monika Benson, Sweden; Vice President Edwige Ponseel, France; Board Member Catalina Crainic, Romania; Board Member and Secretary Gill Ainsley, UK; Board Member…
DMRF Launches First Scientific Journal Dedicated to Dystonia
The Dystonia Medical Research Foundation (DMRF) has partnered with Frontiers to launch Dystonia, a Gold Open Access journal. The journal will bring visibility to the growing dystonia field and highlight advancements in science and clinical practice. “The field is ready for a journal focused solely on dystonia,” said Co-Editor-in-Chief Aasef Shaikh, MD, PhD, Penni and Stephen Weinberg…
Spotlight on the Boston Scientific Foundation Europe (BSFE) – how Digital Health Initiatives are supporting patients across EMEA
In 2019, Dystonia Europe was awarded funding from the Boston Scientific Foundation Europe to create the Dystonia Talks awareness videos for that year’s Dystonia Awareness Month. In this article, we hear from the BSFE President, Sandrine Bazile, as she reflects on the Foundation’s successes and her hopes for the future. Supporting Digital solutions that are…
Entering a New Era of DBS Programming with Game-changing visualisation software
A variety of treatments are available for people living with dystonia; deep brain stimulation (DBS) can be a beneficial treatment option for improving their quality of life. The treatment involves the placement of two electrodes into the brain, connected by a wire under the skin to a stimulator, usually placed in the patient’s chest or…
NORWAY, Digital Dystonia Activities
PhD Jeanette Koht, Norway About Jeanette Koht Working with Dystonia and treatment since 2001. Adviser for Norwegian Dystonia Association (NDF) for many years Last Project together with NDF: Dystonia and physiotherapy Trained neurologist in 2006 PhD Hereditary cerebellar diseases Head of Department of Neurology Oslo University Hospital. The Norwegian Dystonia Association arranged a webinar with Jeanette Koht…
