This week, we received the sad news of the passing of former Dystonia Europe Treasurer, Hermann De Craecker of Belgium. Hermann joined the Board of Dystonia Europe in 2005 and immediately took on the role of Treasurer. With dedication and integrity, he served in this capacity until his retirement in 2012. During those years, he not only…
Themes: Research, Treatment and Experience The Dystonia Days 2025 of the Finnish Association were held in Kouvola, South Finland in September. Some 50 members gathered to meet each other, to get new information about dystonia and to give and to deliver support and share their best practices, how to live with dystonia. The theme of…
Thanks to all the children who entered our recent art competition! We were so happy to read about your heroes and we hope you will make lots more great artwork with your art set prizes. A member of the Dystonia Europe team will be in touch with everyone to arrange delivery! Our Winning Entries:
On Thursday, 30 October, 2025, Dystonia Europe held a webinar with three dystonia experts, and invited the audience to share their questions with them. If you missed the webinar, no problem! You can watch the recording now on our YouTube channel. Thanks to all of you who joined us on the evening and shared your…
I know dystonia well. Not from hearsay, nor from medical readings: I know it on my skin, in my muscles, in my nerves, in my voice, in my daily thoughts. Oromandibular dystonia is my traveling companion—often uncomfortable, always present. But it has never managed, and never will manage, to define who I am. My…
