My name is Sofia and this is my story. I am 20 years old, but I have already been through a lot. My mother had a difficult childbirth. When I was born, I went into a coma because I didn’t get enough oxygen. I recovered slowly, but the doctors said right away that they didn’t…
A Glass of Wine, Without a Straw
A Glass of Wine, Without a Straw Ladies and gentlemen, Some of you might already know me, or have read my story on our website. I am Salvatore Caruso, a board member of the Italian Dystonia Association (A.R.D) and Dystonia Europe. I have Myoclonus Dystonia, and in 2022, I underwent Deep Brain Stimulation. I would…
EFNA General Assembly and Member Meeting in Brussels
Member organisations of European Federation of Neurological Associations (EFNA) met in Brussels for the General Assembly (GA) on April 8th. The main subjects of the GA concerned the annual accounts and the Annual Report for 2025. The annual budget and operational plan for 2026 were also discussed and the strategic plan was approved for 2026-2030….
Driving License and Dystonia: Maintaining Mobility – Ensuring Quality of Life
For many people with dystonia or other health issues, a driver’s license is more than just a piece of paper. It represents freedom. It allows people to go to work, visit doctors, buy groceries, and see friends. This is especially important in the countryside where there are few buses or trains. Without a car, life…
Innovation in Dialogue: Dystonia Europe at the O2I Summit in Barcelona
From January 14 to 16, 2026, Dystonia Europe board member Salvatore attended the ‘Originator to Innovator’ (O2I) Summit by Medtronic in Barcelona. The event, titled ‘50 Years of Innovation,’ focused on the future of neuromodulation and brain care. The Patient Voice as a Bridge to Research One of the main goals for Salvatore was to…
