Next year’s D-DAYs will take place in London, UK on 5-7 July. Beginning of November Dystonia Europe Executive Director Monika Benson met with representatives of The Dystonia Society, CEO Andrea West and Dayna Ferdinandi, Head of Fundraising and Communications, to discuss and plan next year’s event. Occupational Therapist Hortensia Gimeno and Dr. Jean-Pierre Lin joined…
MyDystonia Ambassador Meeting – Dublin 2018
MyDystonia is an application created by Dystonia Europe for people with dystonia to monitor their health condition and daily routines. This electronic diary documents symptoms and disease impact according to medication. This tool can be used by patients for their own records and to improve communication with the doctor during medical appointments to get better…
The Future of Healthcare in the EU – Towards more sustainable healthcare organisations
On 15-16th October, the EFNA Autumn Academy of the Training Initiatives for Neurology Advocates [TINA] took place. 30 participants from neurology patient groups from CEE countries gathered in Bucharest to discuss the future of healthcare in the EU in the context of the upcoming EU elections, as well as how patient groups can achieve better financial…
Dystonia Awareness Month 2018
Our Second Year Participating First of all a great THANK YOU to all of you who took part in our Dystonia Awareness Month on-line activities last September. The success would not have been possible without your support and help in sharing our posts, videos, quotes etc. This was the second time Dystonia Europe was taking part…
Dystonia Europe at the 23rd ESSFN Congress in Edinburgh
Last month Dystonia Europe took part as an exhibitor at the 23rdCongress of The European Society for Stereotactic and Functional Surgery, an organization which frontiers the progress of functional and stereotactic neurosurgery of the human nervous system. About 700 participants, including exhibitors, had come to Edinburgh for this special event which took place at the…
