The 24th Dystonia Europe General Assembly was held on 12 May at the IBIS Styles Roma Hotel in Rome, Italy. Representatives from 15 of the 21 member organisations were present. They were from: Croatia, Norway, Denmark, Sweden, Finland, the UK, France, Germany, Ireland, Italy, Poland, Switzerland and Romania. President Merete Avery welcomed everybody to the…
Dr. Niccolò Mencacci Receives the David Marsden Award 2017
Our congratulations to Dr. Niccolò Mencacci and the David Marsden Award 2017 for his paper: “A Missense Mutation in KCTD17 Causes Autosomal Dominant Myoclonus-Dystonia”. Dr Mencacci was presented with the award by Dystonia Europe President Merete Avery at the D-DAYs 2017 held in Rome last weekend. Dr Mencacci expressed his thanks to DE and Ipsen for the…
D-DAYs 2017 & ARD 25th Anniversary in Rome, Italy
The Dystonia Europe D-DAYS 2017 and 24th Annual Conference and General Assembly were held on May 12,13 and 14th in Rome. It was a joint event between Dystonia Europe and the Italian Association “Associazione per la Ricerca sulla Distonia ” A.R.D. who celebrated its 25th anniversary, as it was founded in Rome in March 1992…
Governance Workshop & Dystonia Leaders Met in Dublin
A 2-day workshop on Governance was organised by the European Federation of Neurological Associations – EFNA, in Dublin, Ireland last week. It was held alongside the Extra General Assembly and members of the EFNA Board as well as representatives of member organisations from disease areas such as epilepsy, Huntington’s, ADHD, ataxia, Brain tumor and more…
Norwegian Dystonia Members Annual Meeting 2017 in Trondheim
This weekend the Norwegian Dystonia Association held its Annual Meeting and General Assembly in Trondheim, Norway. Around 40 members (dystonia patients and family members) had come from all over Norway for the 2-day-meeting. President Anniken Hansen welcomed everybody and gave an update of the achievements of the Association over the past year. The 3-year Physiotherapy…
