Training Initiatives for Neurology Advocates [TINA] workshop took place at the Champalimaud Foundation in Lisbon 17th and 18th of April 2018. The TINA workshops project was launched in 2016 by the European Federation of Neurological Association [EFNA] and is being continued to teach patients how to use the theoretical knowledge gained on these processes,…
Abstract Book from Dystonia Europe 25th Anniversary Conference
The Abstract Book from our 25th Anniversary Conference and D-DAYs 2018 is now available.
Scientific Report D-DAYs Brussels
The 25th anniversary of Dystonia Europe was held in beautiful city of Brussel between April 12th-14th. The breakdown of D-Days 2018 brought together patients, their care partners and family members, physicians, clinicians, scientists, physiotherapists, and pharmaceutical industry members to discuss cutting edge science in the growing field of dystonia. The conference program included a visit…
A HISTORY OF DYSTONIA EUROPE – THE FIRST 25 YEARS – 1993 -2018
How did Dystonia Europe begin, why was it needed, and who are the people and organisations who have contributed over the past 25 years? THE FORMALITIES The organisation was formed as an association of national dystonia patient groups in Spoleto, Italy, on 18 June, 1993. The name was European Dystonia Federation (EDF) and the…
Report from the Dystonia Europe conference 12-14 April 2018
Advertised as ‘D-Days 2018’, this conference in Brussels marked the 25th anniversary of Dystonia Europe. After an introductory session and three presentations in the European Parliament where several MEPs were present and involved on Thursday 12 April, we were given a guided tour of the heart of this huge building complex. Already a theme was…
