September 9, 2018

Romania – Report from a Busy Dystonia Awareness Month

The Romanian Association for patients with dystonia: Asociata Children’s Joy organized on the 8 th of September, the 6 th edition of the National Conference dedicated to patients who suffer from various types of dystonia, their families, and specialists who work in this field. The event took place during dystonia awareness month. The event included…

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September 1, 2018

Welcome September – Dystonia Awareness Month – #DAM2018

Dystonia Awareness Month 2018 is here. We are happy to welcome you to a month filled with online activities to raise awareness of dystonia. We encourage our members, partners and followers to support us. Throughout the month short videos, photos, facts and information about the dystonia will be published on our social media channels: Instagram,…

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August 1, 2018

Have you sent a Dystogram?

At our 25th Anniversary in Brussels we invited speakers and guests to send a ‘dystogram’.  Boston Scientific generously supported the project and produced the specially designed frame.  We encouraged participants to get social and get together in the frame, take a photo and post on Facebook, Instagram or Twitter to congratulate DE and use the…

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