EFNA represents 20 European and International associations across a wide variety of neurological disease areas such as multiple sclerosis, epilepsy, migraine and ADHD. Consensus among our members is that young people are currently under-represented in their associations. It is also felt that the issues facing young people affected by brain and brain-related disorders are not…
New Way of Thinking (Finland)
My name is Susanne I am 57 years old. I was diagnosed with cervical dystonia in 2011. After an accident my head began to turn to the right. I had earlier symptoms, but thought, it was due to working with a computer. My life changed totally!!! Had to stop working. Even with botulinum toxin treatment my neck…
Heavily disabled – slightly mad!
Germany: Heavily disabled – slightly mad! The original title in German is “Schwer behindert, leicht bekloppt” and it is a book about a special friendship. Author Bernd Mann says: “The fear of healthy people towards disabled persons is as large as the fear of handicapped against the healthy ones. It is the fear of not disabled…
DBS and Dystonia: A Discussion with Dr Morgante
An Interview with Dr Francesca Morgante from St George’s University Hospital London, UK St George’s Hospital in London is one of the UK’s largest teaching hospitals and offers specialist care across the spectrum. The hospital is internationally renowned for neurology and offers comprehensive services for the diagnosis, treatment and care for all conditions affecting the…
Do not be afraid of society – educate!
I have had dystonia for many years, I have been avoiding people and public events more and more during these years. Paradoxically, when my symptoms got worse, I started approaching people. Antibodies to The Botulinum Toxin Over a year ago, my body developed antibodies to the botulinum toxin. I have a cervical dystonia and my…
