Finally here – our latest newsletter filled with news, updates from member organisations and much more. Happy reading!
EBrains Meeting in Brussel 9-10 December 2019
EBrains is working on building a shared digital brain research infrastructure for the EU. It started with the Human Brain Project Human Brain Project, which goals are to interconnect computer science, medicine and neuroscience to accelerate the understanding of the human brain and its diseases, and to bring this knowledge to the benefits of patients…
MyBrainNet
Last year Dystonia Europe was one of the first recipient of the BMP (Brain, Mind and Pain) grant from Pain Alliance Europe and Grünenthal for our innovative project MyBrainNet. This is a platform that allows us to create multiple apps and connect these to one platform, where all data is collected centrally. This central platform…
7th Edition of the Childrens Joy Association Event: Dystonia Rehabilition for Adults and Children in Romania
People with dystonia have participated, as well as their families or but also specialists in the field of rehabilitation. From three cities in Romania -Timisoara, Zalau and Baia Mare. Before the workshop, the patients had a social meeting, in the Dr I. Trifon Medical Clinic, where they could visit the cabinet where physiotherapy is practiced. During…
Tyler’s Hope Think Tank at the University of Florida, USA
On November 12th, 2019, the 10th “Tyler’s Hope Think Tank” took place at the University of Florida, USA. This year around the topic of “DYT-TOR1A dystonia: Finding a road map to cure dystonia”. This meeting and the Tyler’s Hope Foundation are initiatives from the Staab family. The two eldest Staab children, Tyler and Samantha, developed…
