EFNA #BrainLifeGoals Project Grants During Brain Awareness week EFNA launched the 2020 round of #BrainLifeGoals Project Grants. This year the focus will be on: Ensuring Equitable Access to Treatment, Services and Support for Neurology Patients and their Carers. Access to treatment is one of the central #BrainLifeGoals of many neurology patients, and EFNA want to…

My name is Catalina Crainic and I am one of thousands of cervical dystonia patients. What is your work experience and how does it relate to dystonia? My experience was a new way of my life, it is an experience from which I have continued to learn. At first everything was confusing, unclear and hopeless,…

Professor Emeritus Marjan Jahanshahi, UCL Institute of Neurology in London, is a clinical psychologist and neuropsychologist. She has been a speaker at many of our Dystonia Europe events where she has spoken about Living well with dystonia. Dystonia Europe has also featured her in a couple of videos that you can find on our Youtube…

The D-DAYs 2020 is postponed until 2021 Due to the situation with the Pandemic Covid 19, it has been decided to postpone the D-DAYs in Dublin until next year. We plan to hold the event in 2021 in Dublin, Ireland, along with the 6th Samuel Belzberg Dystonia Symposium. These measurements have been taken to ensure…

The Reach Out, Reach All project aims to bring the dystonia community together, through film, animation, podcasts and webinars. Dystonia can be an isolating condition. It can be scary not knowing what the diagnosis means, not only for yourself but also how it might affect your friends and family. Although the community is large, individuals can…