On November 12th, 2019, the 10th “Tyler’s Hope Think Tank” took place at the University of Florida, USA. This year around the topic of “DYT-TOR1A dystonia: Finding a road map to cure dystonia”. This meeting and the Tyler’s Hope Foundation are initiatives from the Staab family. The two eldest Staab children, Tyler and Samantha, developed…
My Dystonia 2.0
As you’ve probably read before, Dystonia Europe is currently working on the new MyDystonia. At the moment we are busy creating the new designs, so the new APP will have a brand new look and feel. We think this new design will be more appealing to use and also makes it easier to make new…
MyDystonia Receives a Prize for Patients’ Empowerment
Active Citizenship Network held its prize ceremony of the 2nd Edition of the European Civic Prize on Chronic Pain at the Concert Noble in Brussels. The four categories were: Patients’ Empowerment, Innovation, Professional Education, Clinical Practices. Dystonia Europe had submitted an application for the Patients’ Empowerment Prize for the project MyDystonia. And we were selected…
Visit to a Dystonia Research Lab
Prof Rose Goodchild is one of the members of the Dystonia Europe Medical and Scientific Advisory Board and she had invited me to her LAB at the VIB KU Leuven, Center for Brain Research in Leuven, Belgium. Since 2011 she has been leading a dystonia research group here. The 5-year project was funded by FDR…
Health is a Shared Global Value
Globalisation has created convergence of individual countries’ health problems and, consequently, mutual dependence for generating solutions. This means that in today’s world, we can no longer consider health of particular countries or regions, such as European Union (EU), in isolation. Certainly, diseases know no borders and countries share many of the same health problems, though…
