For this year’s dystonia awareness month we are planning a relaunch of our popular Jump for Dystonia activity! With a new touch and special surprises for you! Look out for information when we come closer to September! Left: Another fantastic Jump for dystonia Ambassador is Yvonne Maxwell in Ireland. She asks…
Dystonia Work during the Pandemic
It seems like only a few weeks ago life was totally normal and the Dystonia Europe Team was in the middle of preparing for our big annual conference D(ystonia)-DAYs 2020 to be held in Dublin next June. Bookings of venue and accommodations were made, speakers were confirmed and social activities being planned when it all…
Participate in a Study by EFNA on Stigma and Neurological Conditions
During Awareness Week 2020 The European Federation of Neurological Associations (EFNA), launched a survey on Stigma and Neurological Conditions . EFNA represents 20 European and International associations across a wide variety of neurological disease areas, such as multiple sclerosis, epilepsy, migraine, ADHD, Movement Disorders such as Dystonia and Parkinson’s, to mention just a few. In…
Rare Disease Day
Rare Disease Day takes place on the last day of February each year. The main objective of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on patients’ lives. The campaign targets primarily the general public and also seeks to raise awareness amongst policy makers, public authorities, industry representatives, researchers, health professionals…
Busy week in Brussels
Last week of February Dystonia Europe attended the event ‘Brain Health as a Global Priority – Time for the EU to Act Now’ in the EU Parliament in Brussels. The meeting was organized by EFNA – European Federation of Neurological Associations, in collaboration with EAN – European Academy of Neurology, and EBC – the European…
