Recently Dystonia Europe launched a new page on its website with the collection of dystonia organisations worldwide. At the moment you find organisations listed in Europe, North and South America and Australia. https://dystonia-europe.org/about-us/dystonia-organisations-worldwide/ We hope that this page can support and help dystonia patients and medical profession in finding the dystonia patient association they are…
Finding Success in Career, Love and Life, in Spite of Living With Cervical Dystonia, Featuring Emmanuel Dalmas
In this episode we get to know Emmanuel Dalmas from France. He tells his very inspiring story of finding success in all aspects of life, in spite of living with dystonia. It took Emmanuel 20 years to receive the right diagnosis, a problem that we hear about all too often. He shares with us what…
Patient Engagement in EU-Funded Brain Research Projects
15-21 March was the international Brain Awareness Week in 2021, an educational initiative aiming to raise awareness of brain and research. During this week on 16 March, EBC, in partnership with EFNA & GAMIAN-Europe held a webinar on patient engagement in EU funded Brain Research Projects within research, health and policy making. Patient engagement in…
Medtronic Recieves CE Mark Approval for SenSightTM Directinoal Lead System for DBS Therapy
Press Release from Medtronic March 22, 2021 This First-of-its-Kind Directional Lead Combines the Benefits of Directionality with the Power of Sensing DUBLIN, March 22, 2021 /PRNewswire/ — Medtronic plc (NYSE:MDT), the global leader in medical technology, today announced the CE (Conformité Européenne) Mark for the SenSight™ directional lead system for Deep Brain Stimulation (DBS) therapy…
The Importance of Physiotherapy and a Collaborative Approach to Treatment of Dystonia, With Physiotherapist Johanna Blom
In this episode we meet with Johanna Blom a physiotherapist who has specialized in helping patients with dystonia. She tells us about how she works with a team of medical professionals to ensure that her patients get the best treatment possible, and she emphasizes on the importance of a collaborative approach when administering injections, medications…
