On 15 June 2021, the MEP Interest Group on Brain, Mind and Pain organised a virtual working session. The event’s main objective was to understand the long-term impact of the Covid-19 outbreak on different population groups affected by BMP disorders, and to define and frame the inequalities and challenges they experience. The working session was…
VOT2 Case Studies on Rare Diseases & Mental Disorders present findings at Synthesis Meeting on 8 June 2021
On 8 June 2021, EBC hosted a virtual Synthesis Meeting for the Value of Treatment 2 case study working groups to present their preliminary findings. The Value of Treatment for Brain Disorders (VOT) is a health economics and outcomes research project coordinated by the European Brain Council (EBC). EBC conceptualized in 2015 the Value of…
Dystonia Europe Annual General Assembly 2021
Dystonia Europe held it’s 28th Annual General Assembly Sunday 31 May. There were 27 participants from 16 countries. The elected DE Board and Staff is from top left: Board Member Jukka Sillanpää, Finland; President Adam Kalinowski, Ireland; Executive Director Monika Benson, Sweden; Vice President Edwige Ponseel, France; Board Member Catalina Crainic, Romania; Board Member and Secretary Gill Ainsley, UK; Board Member…
DMRF Launches First Scientific Journal Dedicated to Dystonia
The Dystonia Medical Research Foundation (DMRF) has partnered with Frontiers to launch Dystonia, a Gold Open Access journal. The journal will bring visibility to the growing dystonia field and highlight advancements in science and clinical practice. “The field is ready for a journal focused solely on dystonia,” said Co-Editor-in-Chief Aasef Shaikh, MD, PhD, Penni and Stephen Weinberg…
Spotlight on the Boston Scientific Foundation Europe (BSFE) – how Digital Health Initiatives are supporting patients across EMEA
In 2019, Dystonia Europe was awarded funding from the Boston Scientific Foundation Europe to create the Dystonia Talks awareness videos for that year’s Dystonia Awareness Month. In this article, we hear from the BSFE President, Sandrine Bazile, as she reflects on the Foundation’s successes and her hopes for the future. Supporting Digital solutions that are…
