Information for Ukrainian dystonia patients seeking access to treatment in Europe This page will be updated with the new support opportunities as soon as they become available. 09.03.2022 SUPPORT IN POLAND Are you Ukrainian refugee with dystonia in Poland? In cooperation with the Polish Dystonia Association, we can help you access consultation and treatment in…
A randomized, sham-controlled trial of pallidal neurostimulation versus botulinum toxin treatment for cervical dystonia (StimTox-CD) Deep brain stimulation (DBS) of the internal globus pallidus is highly effective for various forms of primary dystonia, but is currently considered a last resort therapy for severe and medication-refractory segmental or generalized dystonia according to treatment guideline. The first-line treatment…
After using some parts of my story as background for a presentation on “Living with Dystonia”, I was strongly encouraged to share my story in the Norwegian Dystonia Newsletter. I was born on the west coast of Norway in 1954 and have had dystonia since 1985. Normal life: Like most of us, my life started…
Research has shown that Botulinum toxin injections (BoNT-inj) combined with physiotherapy provide good benefit for most people with cervical dystonia (CD). Advanced treatment with Deep Brain Stimulation (DBS) also requires physiotherapy. Repetition of exercises is important to influence brain remodelling and achieve long-term improvements. Exercises should be individualised according to the pattern, nature and problem…
Another successful Dystonia Awareness Month has taken place. It is amazing to see all the dystonia awareness activities taking place across Europe and around the world. There were special dystonia days and fund raising activities organised by our member associations. Special social media content with information and education on dystonia was created and shared. In…
