The frame around NDF (Norsk Dystoniforening’s) annual meeting in April couldn’t be better. Spring had arrived and Trondheim was bathed in sunlight with nice spring temperatures. Here 47 members were gathered for a weekend that included meetings, guided sightseeing around the city, social fellowship and good food. To the left, Johan Arnfinn Warvik, President of the…
Webinar Drugs and Dystonia
MD PhD. Inger Marie Skogseid Senior Consultant Neurologist and Researcher Oslo University Hospital Photo by The Information Department at University Hospital On February 22nd we hosted our 10th webinar in our webinar series. There were nearly 60 participants who followed the webinar on zoom, and sent live on Facebook. Inger Marie gave us an…
Dystonia Europe stands in solidarity with Ukraine
Dystonia Europe stands in solidarity with UkraineDystonia Europe is deeply concerned about the latest horrific developements in Ukraine, at the enormous human suffering and loss of life caused by the war.Our thoughts are with the Ukrainian people and in particular with people living with dystonia and their families, as well as our dystonia member association…
Winter Think Tank 2022
Dystonia Europe Winter Think Tank 2022 was held on Zoom last February. DE had a Board Meeting the day before. Members of the Think Tank are our Platinum sponsors: Boston Scientific, Ipsen, Medtronic and Merz. President Adam Kalinowski welcomed all to the Think Tank meeting and Executive Director Monika Benson gave an update on the…
Support for Ukrainian dystonia patients
Information for Ukrainian dystonia patients seeking access to treatment in Europe This page will be updated with the new support opportunities as soon as they become available. 09.03.2022 SUPPORT IN POLAND Are you Ukrainian refugee with dystonia in Poland? In cooperation with the Polish Dystonia Association, we can help you access consultation and treatment in…
