It is with great sadness Dystonia Europe has announced the passing of our President, Adam Kalinowski, at the age of 37, following a tragic accident on 10 November, 2022. Adam is from Poland but has lived in Ireland for the last 16 years. In 2006 he was diagnosed with cervical dystonia. Very soon he founded…
Special Workshop on Physiotherapy for Cervical Dystonia
End of October the first meeting of a 3-day workshop on Physiotherapy and Cervical Dystonia was held in Umeå in Northern Sweden. Physiotherapist Johanna Blom from Skåne University Hospital in Malmö, Sweden, gave an introduction to what dystonia is and how it is treated. A demonstration patient was invited to take part in the…
Meet Bengt-Erik Calles, Sweden
What is your name? My name is Bengt-Erik Calles and I live in Sweden. I am President of Dystonia Sweden. I live 5 months of each year at my summerhouse in Hjortnäs, Leksand and the rest of the year in Falun. Both places are situated in Dalarna. What are the benefits of working within…
Very Sad News about Dystonia Europe President Adam Kalinowski
With great sadness and heavy hearts, the Dystonia Europe board brings you the news that our dear friend, board member and President, Adam Kalinowski has passed away. We are in touch with Adam’s family and our thoughts are with them and his close friends at this difficult time. Out of respect for them, we ask…
Finnish Dystonia Days 2022 in Oulu
The Finnish Dystonia Association, a nationwide patient organization, decided to arrange the Dystonia Days Conference in the largest city in Northern Finland, namely Oulu. Some 60 participants assembled to meet people from all over the country, get and give support and naturally, learn from expert speakers, a neurologist, and a neurosurgeon. After two years of…