Our congratulations to Dr. Michael Zech, from the Institute of Human Genetics, Technical University of Munich and the Institute of Neurogenomics, Helmholtz Zentrum München, in Munich, Germany and the David Marsden Award 2023 for his paper: Biallelic AOPEP Loss-of-Function Variants Cause Progressive Dystonia with Prominent Limb Involvement On Saturday Dr. Zech was presented with the…
The Positive Twist Podcast
Season two of our successful podcast The Positive Twist will be launched end of June. We have 5 new episodes to be published at the end of each month until October. We have met with both dystonia patients, board members of Dystonia Europe and medical experts in this season. You will find the podcast on…
EPF Annual General Assembly and 20th Anniversary
EPF 20th Anniversary Marco Greco, President of European Patient Forum (EPF) opened the meeting 28th April 10.30 am. in Brussels. Dystonia Europe is a full member of EPF and was present at the meeting. Looking back the organisation has grown tremendously during the 20 years since it was founded in 2003. Reflections were made on…
30 Years of Dystonia Europe
This year Dystonia Europe is celebrating its 30th Anniversary. Back row: Didi Jackson, Germany; Alistair Newton, UK; Feli Justo Alonso, Spain; Alan Leng, UK; Gunilla Noren, Sweden. Front row: Tore Wirgenes, Norway; Jean-Marc Bildan, France; Laura Latini, Italy; Maja Relja, Croatia; Beppy Smitshoek, Netherlands. Absent: Kai Naunung, Denmark Our organisation was formed as an…
Greetings from The Founder President
Dear Friends, I send my very best wishes to you all as you celebrate Dystonia Europe’s thirtieth anniversary! Many, many congratulations and thanks to the large number of people who have contributed so much to the successes of our organisation over those thirty years. This must include not only our DE Board members, staff, advisers,…
