Double Anniversary of the Austrian Dystonia Association “You’re not alone” On December 5th in Vienna, the ÖDG celebrated its 20th Anniversary as an association and its 25th Anniversary as a Dystonia self-help-group. Christa Hafenscher founded in 1995 the Austrian Dystonia Association, five years after she had launched a Dystonia Support Group. The Anniversary was celebrated…
David Marsden Award 2015
The 2015 Award of € 10,000 is generously sponsored by Ipsen Pharma and has been awarded to Dr Cathérine C S Delnooz for her paper on: Task-free functional MRI in cervical dystonia reveals multi-network changes that partially normalize with botulinum toxinA. The research was performed at the Radboudumc, Nijmegen, during Dr. Delnooz’s neurology training. Currently she…
Health Professionals in Slovenia learn about dystonia
The Medical Congress ”Heart & Soul” held in Portoroz, Slovenia, last September, attracted about 400 participants: family doctors, physiotherapists, nurses and many others from the medical field in Slovenia. Dystonia was one of the topics on the programme and after Neurologist Nina Zupancic, Ljublana, had explained to the audience about dystonia: symptoms, diagnosis and treatment,…
Dystonia Europe in Germany
The annual meeting of DDG, the German Dystonia Association, was held in Kassel. President Robert Scholten from Dystonia Europe took part in the meeting. After the medical presentations, there was the opportunity to take part in a Jump for Dystonia photo shoot. We would like to thank DDG in all their work to help increase…
EFNA – Empowering Patient Neurology Groups
Alongside the EAN Congress in Berlin, EFNA (European Federation of Neurological Associations) held its General Assembly. A new President, Ann Little (representing the International Bureau of Epilepsy) was elected. She takes over after Audrey Craven who stepped down after almost four years in the position, leading the work to implement EFNA’s new strategic direction. An…
