Recently Dystonia Europe launched a new page on its website with the collection of dystonia organisations worldwide. At the moment you find organisations listed in Europe, North and South America and Australia. https://dystonia-europe.org/about-us/dystonia-organisations-worldwide/ We hope that this page can support and help dystonia patients and medical profession in finding the dystonia patient association they are…
Patient Engagement in EU-Funded Brain Research Projects
15-21 March was the international Brain Awareness Week in 2021, an educational initiative aiming to raise awareness of brain and research. During this week on 16 March, EBC, in partnership with EFNA & GAMIAN-Europe held a webinar on patient engagement in EU funded Brain Research Projects within research, health and policy making. Patient engagement in…
Medtronic Recieves CE Mark Approval for SenSightTM Directinoal Lead System for DBS Therapy
Press Release from Medtronic March 22, 2021 This First-of-its-Kind Directional Lead Combines the Benefits of Directionality with the Power of Sensing DUBLIN, March 22, 2021 /PRNewswire/ — Medtronic plc (NYSE:MDT), the global leader in medical technology, today announced the CE (Conformité Européenne) Mark for the SenSight™ directional lead system for Deep Brain Stimulation (DBS) therapy…
Newsletter Winter 2020
NEWSLETTER WINTER 2020
Digital Activities: Dystonia Webinar Series & the Positive Twist Podcast
As already shared in previous newsletters our most important event and activity every year, our annual meeting the D-DAYs Conference 2020 was cancelled due to the Covid-19 pandemic. Together with our partners (Boston Scientific, Ipsen and Medtronic) and the Dystonia Europe team we could rapidly change from the planned face-to-face activities to organizing on-line events…
