September 29, 2018

Dystonia Europe at the 23rd ESSFN Congress in Edinburgh

Last month Dystonia Europe took part as an exhibitor at the 23rdCongress of The European Society for Stereotactic and Functional Surgery, an organization which frontiers the progress of functional and stereotactic neurosurgery of the human nervous system. About 700 participants, including exhibitors, had come to Edinburgh for this special event which took place at the…

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September 22, 2018

EFNA Meetings in Brussels

Dystonia Europe Executive Director Monika Benson is a Board Member of EFNA. This week she attended its Management Committee Meeting in Brussels. The work of EFNA is concentrated around four pillars: Awareness, Empowerment, Advocacy, Engagement which guide the EFNA Board on what projects and activities to focus on. At the meeting EFNA Executive Director Donna…

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September 1, 2018

Welcome September – Dystonia Awareness Month – #DAM2018

Dystonia Awareness Month 2018 is here. We are happy to welcome you to a month filled with online activities to raise awareness of dystonia. We encourage our members, partners and followers to support us. Throughout the month short videos, photos, facts and information about the dystonia will be published on our social media channels: Instagram,…

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April 22, 2018

Norwegian Dystonia Association 25th Anniversary Celebration

The week after the Dystonia Europe 25th Anniversary events, NDF, the Norwegian Dystonia Association, held its 25thAnniversary celebration and Annual General Assembly at hotel Olavsgaard, just outside of Oslo. 75 dystonia patients and family members from across Norway had come to the event. Saturday morning, after registration, NDF Chairman Johann Arnfinn Warvik, welcomed everybody to a weekend…

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