March 12, 2022

Dystonia Europe stands in solidarity with Ukraine

Dystonia Europe stands in solidarity with UkraineDystonia Europe is deeply concerned about the latest horrific developements in Ukraine, at the enormous human suffering and loss of life caused by the war.Our thoughts are with the Ukrainian people and in particular with people living with dystonia and their families, as well as our dystonia member association…

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March 9, 2022

Support for Ukrainian dystonia patients

Information for Ukrainian dystonia patients seeking access to treatment in Europe This page will be updated with the new support opportunities as soon as they become available. 09.03.2022 SUPPORT IN POLAND Are you Ukrainian refugee with dystonia in Poland? In cooperation with the Polish Dystonia Association, we can help you access consultation and treatment in…

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December 19, 2021

DBS study in Germany is still Recruiting Patients suffering from Cervical Dystonia

A randomized, sham-controlled trial of pallidal neurostimulation versus botulinum toxin treatment for cervical dystonia (StimTox-CD) Deep brain stimulation (DBS) of the internal globus pallidus is highly effective for various forms of primary dystonia, but is currently considered a last resort therapy for severe and medication-refractory segmental or generalized dystonia according to treatment guideline. The first-line treatment…

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December 3, 2021

Dystonia Physio Exercise HUB – A Digital Platform with Exercises for Cervical Dystonia

Research has shown that Botulinum toxin injections (BoNT-inj) combined with physiotherapy provide good benefit for most people with cervical dystonia (CD).  Advanced treatment with Deep Brain Stimulation (DBS) also requires physiotherapy. Repetition of exercises is important to influence brain remodelling and achieve long-term improvements. Exercises should be individualised according to the pattern, nature and   problem…

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